It is quite difficult to stay positive at times. I do try really hard. On my last blog I said my pain was 'not really bad', and it isn't compared to many people; but I have to admit this last week hasn't been a particularly good one. I try and play it down for several reasons. I don't think it helps me or anyone else to constantly be moaning or talking about pain, but I do want to keep my blog truthful.
I think the pain is worse after my physio and each time I introduce new stretches. I think stressful situations make it worse. I know too much sitting will cause it. I've had all three this last week. It then gets hard to stay positive. Then if I stay with that mindset too long it can bring me down. I know that aggravates the pain even more. It's a vicious cycle. Therefore I try and tell myself it's not so bad, in the hopes it really won't be. Which probably makes no sense at all!
This last week the pain is constantly present when I have to sit, and there are obviously times I just have to sit. Eating for one, reading a book for another. I'm also finding lately if I stand for too long at my work station I get really bad lower back pain.
We are due to go to London soon and the trains are extortionately expensive over here (we could go abroad for less!) My husband (who is so supportive) wanted to go by coach which is loads cheaper, but adds at least an hour onto our journey. I simply cannot entertain the idea of a long coach journey. Coach seats can also typically be really uncomfortable because of the angle they are at. So we are going by train. It is little things like this, that many would take for granted, that really frustrate me.
The London trip is to see a band- so, more sitting (usually you can stand, but this one seems to be seated which is odd). Not to mention various tube journeys- although with these I can stand.
Then, there's the fact I need to get my hair done- cut and colour. Vanity I know, not an essential thing, but the practicality of sitting in a chair for a colour, wash, cut and blow dry for a couple of hours does not thrill me. Normally I have to break these things up over two visits, which is what I'll have to do this time.
At some point I need some dental work done. A root-canal is looming. I'm delaying it for as long as I can, but know that at some point the tooth pain will become such that it simply cannot be ignored. How do people with chronic tailbone/buttock/hip pain sit in a dentists chair for long treatments; as it is, I get so nervous and tense I am practically forcing my tailbone through the seat!
The physio wants me to try a new treatment to compliment his, so am seeing a practitioner to talk about this next week. It is free on the NHS which is a bonus. If it sounds good I will let you know, for now I'll keep it under wraps!
So, there you have it. My pain, my moan. As I said, it is not really bad, I am not in tears with it and I carry on with life. No-one would know to look at me that I am in pain. Although the tiredness and bags around the eyes is a bit of a give away.
Nurse who suffers chronic tailbone pain
- Pain in the arse
- I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.