Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Tuesday, 8 December 2015

Update

Not much to report lately. There's no change really with anything. I've been busy getting ready for Christmas, lots of family members to buy for makes it an expensive time of year.

I'm regularly gyming now- at least 3 times a week. Pain wise things are much the same. I cannot sit for very long in any one position. I'd say I start to fidget after about ten minutes, and to have to move and change position properly after about half an hour. Another half an hour to an hour and I have to stand and take the pressure off my tailbone and piriformis.

This is an improvement to last year, when I had to take time off work due to the pain. I could not sit at all, and my job- although largely out and about, also involved office work, and I simply could not do this side of the job. I was also incredibly low in mood, brought on by my pain, and the lack of sympathy and understanding shown by so many. I think that I was at my lowest, and just did not know which way to turn.

So, although the pain continues, it is nothing like it was. I'm not sure why though which is frustrating, so I don't know what to tell you.

I regularly take nortriptylline every night. Sleep for me is still poor. As I have mentioned I gym regularly. I also try and stay off my bum wherever possible. I have a standing station at work now. I still use my heat pad to soothe the aches and pains. I regularly take paracetamol. I have a full body massage every 3 weeks. I am also now just accepting of things. I have accepted how things are. I have accepted that no-one else really understands, and that it is an invisible ailment. I am often frustrated by this, but quite simply- it is, what it is.

I am supposedly getting Cognitive Behavioural Therapy next year, but will wait and see how I am then, and how it fits around work. I'm not sure I need another professional telling me how to cope and manage my pain, I think I am doing quite well now on my own. I've had long enough to practice!

I am also yet to be convinced about Central Sensitisation that I have written about. I understand the theory of it, certainly; but I do have actual damage in my lower spine and tailbone, so there must be some element of pain caused by this? It cannot all be my body misinterpreting pain signals surely? My body is, I would argue, correctly warning me to avoid further damage, and to keep off my bum.

I know I am fortunate compared to many sufferers, and I am grateful that I am not in 'that place' where I was this time last year.


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