Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Tuesday, 24 November 2015

Coping

I've been up to London the last few days. This has involved train journeys, sitting in a theatre and lots of sitting around.

How have I coped? Well, the train involved the usual fidgeting and getting up for toilet, and drinks (not at the same time!)

We went to the ballet- I haven't been to the ballet since childhood. I was extremely wary. However, the performance was broken up; it was an hour, then a twenty minute break, then half an hour and another twenty minute break, then the final half hour. This made things a bit better, although I was still very fidgety. I just cannot eliminate the pain in my right buttock/hip area. I always assume this is my piriformis letting me know it's not happy.

Meals were not too bad, as I always manage to find a hard seat so I can sit correctly, weight off my tailbone and piriformis, or where I can lean forwards onto the table. 

I am still conscious of people noticing me fidget, or sitting awkwardly. I wish I could get over feeling embarrassed. The truth is people probably don't even give  me a second look.

All in all, I feel I coped well. I have not taken any pain relief as I have ran out. 

I am in pain now, again it's my piriformis more than anything. I feel the level of pain I have is bearable, it's not nice, and obviously I'd rather be pain free. However I am not sure I'll ever achieve this. I guess this is where understanding chronic pain, central sensitisation would help. I have been told when I go for cognitive behavioural therapy (CBT) this all gets explained. Will understanding the cause of my pain help? Will learning coping strategies work? I have to wait until next year to find out.

I still feel confused that I can be in pain, real pain, and yet this apparently is now due to my brain misinterpreting pain signals. It does make me feel they are telling me it's all in my head, even though they keep trying to reassure me this isn't the case. I know the brain is capable of so many things, but to tell me I'm in worse pain than I am, is hard to accept.

Anyway, here's a couple of nice Christmas pictures from my weekend-



1 comment:

  1. The pain isn't all in your head. I was told similar things by my Physiatrist. I read a book - Explain Pain. I think that you have to educate yourself and form opinions about what may be going on with your body. I was told to try Pelvic Floor biofeedback. My PT said that wouldn't help. I think you can get very focused on what you are doing and ignore pain but I don't think it is in your head..

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