Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Friday, 6 November 2015

Cardiology

The cardiologist has confirmed that the left side of my heart is impaired. She is unsure why. While the MRI confirmed the echocardiogram findings, it did not shed any more light on why my heart muscle is damaged.

She has said to stop drinking completely. So to be realistic in doing this I will start in the New Year. Obviously I do not drink to excess anyway. She has agreed that my alcohol consumption is not excessive, it falls well within the guidelines. I feel a bit like she is grasping at straws to be honest. However, I guess this is the cheapest, easiest and quickest scenario to rule out. Alcohol related cardiomyopathy is apparently quite common nowadays according to her. Apparently if it is alcohol related, 3-4 months off completely will reverse the damage- this is what she has told me anyway.

She explained that like smoking; someone can smoke 40-60 a day and be fine, whereas someone else will smoke 10 a day and have health related problems. She says it is the same with drink, even small amounts can cause damage in someone sensitive to it.

The cardiologist is going to put me on beta blockers to slow my heart rate down.

Then if beta-blockers and stopping drinking show no improvement, she will recommend a Cardio-Pulmonary Exercise Tolerance Test, and genetic screening. The GP has already ruled out thyroid problems and other possible causes detected in the blood.

My next appointment is therefore sometime around April-May 2016.

Until then I will carry on with my exercise, and healthy eating.

I have also been in touch with the Cardiomyopathy UK who have been very informative. I am awaiting a reply from them regarding the cardiologist suggestions.

PM- Reply from Cardiomyopathy UK- without going into too much detail here, I have provided them with more personal information, and they have suggested seeing my GP. They feel (and they are trained practitioners) that a second opinion should be sought. They feel that alcohol is unlikely to have caused the damage, and that it is more likely to be due to chronic sinus tachycardia or a hereditary condition, bearing in mind my Hypermobility/Ehlers-Danlos.

My GP has a 3 week wait! So I will have to try and get a cancellation.

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