I have an MRI booked for Monday, and a follow up with the cardiologist on Wednesday.
As I am not overweight, don't smoke, don't have high blood pressure, drink within the guidelines and exercise regularly she is not sure what the cause is. She feels it may be hereditary, but does not feel it is related to my Hypermobility/Ehlers-Danlos.
I am trying to think positive. I am telling myself that if I didn't have coccydynia, which led to the diagnosis of Ehlers-Danlos/Hypermobility I would not have been referred for an echocardiogram. This cardiomyopathy may not then have been discovered and could have progressed until...until I don't know what.
I am once again waiting on more answers, but this time for my heart. What has caused the damage, how long has it been there, is it progressive, what if any treatment should I be on, and how do I manage it long term.
For the record, my coccyx and piriformis still hurt and I am rather fed up with so many things going wrong at the moment!