Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Sunday, 20 September 2015

My absence

Apologies for my absence. Apart from being away for a few days I got some test results back from my MRI and echocardiogram. Both have given me food for thought.

I also managed to dislocate my middle finger tendon. This was popped back into place in A&E, but is still sore. I think they should have splinted it, but they didn't.

In brief- My MRI shows a degenerating coccyx (still) as well as a 'bulging disk' in my lower back. My echocardiogram also showed some 'abnormalities'. Obviously it is the latter that concerns me most. Being medical- 'a little knowledge is a dangerous thing', I have obviously not been thrilled by the news.

I am told it is not 'urgent' and does not require immediate attention, so have to wait until I can see the rheumatologist again (as he arranged for the tests). I obviously want to know what these changes mean to me, how to manage things and whether things will progress or stay the same. I do not know if these findings are due to my hypermobility/Ehlers-Danlos. I also don't know if they are due to my heart rate - which is between 90-130 at rest; although my GP tells me the two are unrelated. (I am not sure myself).  The not knowing is driving me nuts to be honest. Hence my absence. I have needed time to digest what I have been told.

Regarding my lower back, I will also need to know how serious (if at all) this is. I need to know whether carrying heavy bags and equipment around at work is doing even more damage, and I need to know how best to manage things.

So for now I'll keep this entry brief, until I have seen the specialist and know what's going on.

Coccyx and piriformis are still painful, I think this is just how things are now. I am just trying to manage them as best I can.

All in all, I'm doing ok, but starting to feel my age!


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