Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Saturday, 26 September 2015

Low point

I feel quite despondent lately. The rheumatologist cancelled my appointment and is supposed to be writing to me instead. This I find odd, and also disrespectful- I feel he is not taking me seriously, or appreciating how worried I must be about my echocardiogram results. I am telling myself it can't be serious or he would have still seen me, or have written more urgently. However, in my profession I see patients with heart failure and cardiomyopathy, and I know how serious it can potentially be, to have any kind of heart condition. I feel permanently shattered- I was told this is due to the pain and fibromyalgia, but what if it's because my heart races along between 90-130 even at rest.

One sees these specialists, one specialist tells you one thing, another tells you something else. That's their job, and they cannot see outside 'the box' that is their speciality, while we, the patient, the person, the human is forgotten. We are just our illness, just our symptoms. I always try and treat my patients as I would like to be treated, or how I would like my family to be treated. Some professionals just do not seem to have this same attitude.

My coccyx still hurts, my piriformis (well, right butt cheek anyway) has started being really sore again. 

I feel fed up, and disillusioned by healthcare professionals once again. 

I am playing the waiting game now regarding my heart. I am at a standstill with my coccydynia and piriformis. I have made a GP appointment for a weeks time. I have decided to take control and ask to see a cardiologist.

Paracetamol, Tramadol, my ring donut cushion and heat pad are my salvation at the moment; that and having an understanding and loving family. I appreciate that I still have much to be thankful for.

I have used this before, but will use it again, as it sums up how I feel, and makes me smile!

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