Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Thursday, 3 September 2015

A busy few days

Last weekend we went to Windsor. This is about a two hour drive from us. We could have taken the train, but this would have meant several changes, and a much longer journey as a result. I drove, as I find my car seat really comfortable (surprisingly!) We stopped on the way, so I could get out and have a stretch.

On that Friday, once we'd checked in, we had a walk around Windsor, and a meal in a nearby pub. Chairs were comfortable here too.

Saturday we went to the races. We got there by a short boat trip along the Thames.

Again- comfortable seating on the boat, and only a short 10 minute trip. We had a nice meal at the races, and once again- I was comfortable as I could lean forward onto the table, taking my weight off my tailbone. We also did a fair bit of walking at the races.

Sunday we came home.

All weekend, my coccyx pain was bearable. I think this has been due to a variety of seating, and regular changes of position, also a fairly active weekend. So despite driving I have been ok pain wise. This has not been dependant on my mind being occupied, as I kept thinking 'great, I'm not in pain'. I also wouldn't say I was more active this weekend than at any other.

In fact at work today, I have been really busy. I have spent the day visiting patients or standing at my desk; and yet now, the pain is almost worse than it has ever been. That being said, it's buttock/piriformis pain rather than my coccyx. 

So I am thinking- is it stress related (not that I felt stressed today- in fact I had quite a nice day!) Or maybe the weather has a bearing? My pain is worse when it's damp, cloudy and grey like today. Or is it hormonal? Or is there no actual logic to it at all?

I wish I new as then I could capitalise on this knowledge! Maybe I should get a SAD light? This is something the rheumatologist suggested regarding my pain being linked to fibromyalgia.

In her book 'Living with Fibromyalgia', Christine Craggs-Hinton says -
"During Winter the decline in daylight hours can cause a marked decrease in the amount of serotonin produced by the body, triggering an increase in fatigue, depression , susceptible people."

Christine suggests that this can lead to Seasonal Affective Disorder (SAD).

Christine goes on to explain that people with Fibromyalgia have low levels of serotonin anyway, and this may explain why their symptoms are worse in the winter months. She claims that using light therapy can greatly reduce sufferers symptoms.

There are also some people who claim it may help any chronic pain condition.

Light Therapy and Chronic Pain

Light Therapy for pain relief (The Telegraph)

Maybe in my search for permanent pain relief, a light box should be my next step?

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