Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Monday, 6 July 2015

No joy

The acupuncture clearly has not worked. I have been crawling the walls with pain the last 48hours. Mainly my right butt cheek, radiating into my hip and down the front, side and back of my thigh. I am also getting pain in my front on the right hand side.

I can only describe this pain as a deep burning, inflamed, aching, and  gnawing pain; pain that causes my whole right side to feel stiff and tender. On a pain scale it's been 10/10, excruciating.  It is as if there is a red hot fist boring it's way through my buttock trying to get into my hip joint.

Last night I took my maximum dose of Tramadol and Paracetamol, as well as using my heat pad (despite the hot weather). The result was sleep from 00.00hrs to 03:00hrs. Consequently today is a right off (luckily it is a day off).

I do not know what to do with myself. Exercise would probably help, but I feel too shattered. I should be doing housework...but same thing applies. I certainly don't feel safe to drive to the gym.

Tomorrow evening I have my appointment with the (private- paid for out of my own money) Connective Tissue Specialist/Rheumatologist. Initially this was to get his opinion on whether I have some kind of connective tissue disorder- now I also need help to rid me of this pain- again. Maybe this kind of specialist will be the way forward?

Coincidentally the NHS just called to say that due to a cancellation they can see me this Wednesday (rather than September).

At least this way I am getting two opinions in a short space of time.

I am getting desperate. What have I done to deserve this pain for so long. I don't think I've been a bad person. I spend my working life caring for others... I know there are people a lot worse off than me, but sometimes knowing that really does not help.

I want to feel better. I want 'me' back. I want to wake up one morning feeling pain free, and not having to consider how to approach certain aspects of my life that others take for granted. For example - I have been invited to the theatre next week- considerations (a) train journey (b) tubes (c)  the theatre. All sit down things. Some friends at work want to go for a meal then to the cinema- considerations (a) drive there (b) meal (c) cinema. At the moment I am struggling to be comfortable at home, no-where is comfortable to sit and lying down now also offers no relief, whereas it once did.

I must be a bad person because I know some say 'I wouldn't wish this on my worst enemy'....well sorry, there are a few (who shall remain nameless) who I would wish this on, even if just for a few days (not years like I have suffered). There are still some people who just don't seem to 'get' what chronic pain is like, and don't even seem to have the capability or desire to empathise or sympathise. So to them I'd say 'here you go- have this for a week', then show me no compassion.

Maybe I should pre-warn these two separate consultants that I am pinning all my hopes on them, and how utterly desperate I am.






2 comments:

  1. So sorry for the extra pain. I have had this issue for a year. I am now seeing another pelvic floor specialist. The PT has also had tailbone issues. Yes I can really empathize with you. I get so tired of not being able to sit without some discomfort and pain. I hope you find someone that can help you.

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  2. Sorry for the delayed reply and Thankyou for your comment. Much appreciated. I hope your pain (continues to?) improve.

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