Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Sunday, 3 May 2015

Still uncomfortable

Sometimes it's hard to write, when all I am doing is talking about my pain. I don't want to come across as moaning all the time as that helps no-one.

That being said, I still have pain in my right buttock, which just won't shift. If I look at possible causes 'Piriformis syndrome' seems a likely culprit. You have two piriformis muscles, they run horizontally from the lower spine to the top of our thighbone. The sciatic nerve lies over, or in the piriformis muscles. So if this muscle becomes tight or spasms it places pressure on the sciatic nerve. This results in pain in the lower back and/or pain that radiates to the buttocks and down the leg. Pain is apparently sometimes (as in my case) made worse by sitting.

There is also the gluteus maximus muscle. Any tightening or spasming of this muscle can also cause buttock and/or coccyx pain.

I found this link about pain caused by gluteus maximus trigger points. It also pretty much sums up my pain. Triggerpoint therapist- explanation of gluteus maximus trigger points

Again, as with all coccyx related things, sites seem to contradict themselves. I have found some sites that would suggest my pain is due to the piriformis, and others, like the above, that would suggest it is related to the gluteus. I guess it could be a combination of both as they are so close anatomically. Also- although I know my coccyx is degenerating and is hypermobile, I also know I get a lot of muscle knots. I am assuming that if these muscles become tight and or spasm, that it is not the same as muscle knots that my physio has been treating, but I don't know. Does my coccyx cause my muscle pain, or does the muscle pain aggravate my coccyx pain? Or is it referred pain from my pelvic varices and/or distended bowel?

This buttock pain is so much worse when I sit, and as it's the weekend I have been sitting more. I know I should gym, but feel tired from the pain. It's such a vicious circle. I just wish I had a better knowledge of these things.

I am thinking what I should do, and should have been doing is keeping a diary of pain. I need to be keeping a record of where it hurts and when, as it does seem to vary.

I have an appointment with a pain Consultant on May 22nd. This is on the NHS and was arranged a very long time ago (last September). When I saw him initially he wanted to do a nerve block into my coccygeal area. However, I am not sure this is the right thing for me. If I knew categorically my coccyx was 100% responsible for all the pain I was getting I'd jump at the chance. Now, I'm just not sure. I have been told so may different things, been given so may possible causes of the pain that this nerve block may not be the right thing. I also have my own ideas. I am hoping they will really LISTEN to me, and not have a pre-set idea of what they want to do. I want to be treated as a person as well as a patient.


  1. I agree with you why do we get different diagnoses from different practitioners , the pelvis must be very complex or therapists are second guessing , it is frustrating and getting expensive . Someone said to i should get kinesiology ? muscle testing . How many therapists does it take to get a correct diagnoses ? It would be nice to be treated as a person instead of someone's income .

  2. Totally. It's really frustrating!