Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Monday, 27 April 2015

Awful train journey

Yesterday I spent 2 and 1/2 hours on a train. The pain was awful; it felt like every minute sitting was taking a minute off my life. I hadn't brought a cushion- I have yet to find one that works. It wasn't really an option to stand.

Today I'm heading home. Only 1 and 1/2 hours; so hoping I'll survive. 

I've forgotten what it feels like to not be in pain, to be able to sit comfortably, to do things so many take for granted.

I've been asked to review a cushion, which I may as well do- nothing to lose. If it helps then all the better & Ill let you know.


6 comments:

  1. Yeah i wonder how many different cushions there are , you only hear about 2 the donut ring and the cut out one , the donut is inflatable ? It will be good to read your review of the cushion .Will that involve a train ride ?
    I agree we take sitting for granted until it has a effect on us , which impacts our life to travel ,socialise ,go to the movies dinner ,work etc etc

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    1. Yes, seems to be the donut ring, and the coccyx cut-out mainly- and different makes of each. But if you look on coccyx.org there are many others that people use. I'll try and put a link up. Not sure if my review will involve a train ride, it'll certainly involve use at home.

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  2. Do you take pain killers for when the pain is bad ?

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    1. Hi, I have tried so many, but never found any that helped. Plus the side effects were not tolerable for me. They were just not worth it. All I now take is Paracetamol (every day 4 hourly)- I don't really think that helps either, it's more of a psychological crutch I think. I've just been sat on my heat pad, and that definitely helps most.

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  3. I have become a lot more reserved when it comes to travel
    the things we take for granted

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    1. Yes, I know what you mean. I have just turned down a relatives wedding as it meant a 3 and 1/2 hour car journey (or longer if traffic bad) and then a long ceremony. It would have been an all day event. Not sure my family will understand, in fact I'm sure they won't. Like you say- people take these things for granted, unless you suffer you just don't understand.

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