Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Tuesday, 10 February 2015

where to turn to next?

I had my surgery last Friday- a laparoscopy for removal of coil and cystectomy.

Well, the cyst burst the night before, so that was gone, and the coil was successfully retrieved.

The gynaecologist has now provided me with some answers....or more questions, both really!

Apparently I have pelvic varices. These are varicose veins in the pelvis. The ovarian/pelvic veins are dilated, my valves have become less elastic, blood has pooled due to gravity and the veins have become enlarged and bulging. They are not visible from outside, so I was unaware that I had them. He informed me that some of these were thicker than his finger. He also told me that this can cause pain in and around the rectal area. A dull, dragging, aching pain (like varicose veins in the legs). He said it may well be adding to my coccydynia. Sitting can make the pain worse. It is normally worse on one side- mine happens to be the right side, where apparently my varices are worse. Lying down is reported to help the pain- and for me it does. But, then it helps my coccydynia in general.

Strangely it is more common in women between the ages of 25-45, with multiple pregnancies- neither of which I am/have. Obviously, I spent years as a nurse on my feet, so chances are that this has played a part. It's the only thing I can think of.

He also told me that I have a large, distended, floppy bowel. He said this is so large that it takes up the whole of the cavity on my right side and is pressing on my coccyx. He feels this is contributing to my coccyx pain.

So, maybe I have some answers now. I know my coccyx bones are degenerating and in an awkward position (I have seen the Xrays). I now know that pelvic varices and enlarged bowel are contributing to the general coccydynia.

What I don't know, is what to do next. He gave me no real answers. He suggested maybe a bowel specialist. He says there is not much I can do about the varices.

I am booked in to see my GP next Tuesday (first available appointment!)

What I need is a magic wand......anyone?

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