Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Tuesday, 17 February 2015

Gp and Occupational Health

Both my GP and Occupational Health nurse are happy for my return to work tomorrow.

My GP agrees with the gynaecologist and feels my bowel pressing on my coccyx is a major factor in my pain. Especially as my coccyx is degenerating. However, she supports me in my decision not to pursue this. It would potentially mean bowel surgery and removal of part of the bowel, which to me seems very extreme. It would probably just cause additional problems with no guarantees of success. So for now I have upped my fibre intake and am taking a laxative/bulking agent/softener (all in one!)

I am also trying antidepressants at the pain relief dosage in the hope that this will also help. Although I know I may feel pretty rubbish for the first two weeks. The evidence for the links between antidepressants and pain is too convincing to ignore.

Both were keen on the idea of CBT as a way of learning to cope. However my husband is not so keen. I think because I have gone from one thing to another in my quest for some solution, adding something else to the mix is maybe one thing too much. He has been unbelievably supportive ("in sickness and in health!") But perhaps he is right. I have agreed to give it 2-3 weeks to see how things are. I owe him that much, and I can see where he is coming from. I have tried MUA's, steroid injections, ultrasound guided steroid injections, Pain Management, physio, women's health physio, a chiropractor and numerous GP appointments over the last 5-7 years, and travelled around the country looking for the best. I've seen trauma and orthopaedic surgeons, and now a gynaecologist. Nothing has helped 100%, and with each thing tried I get hopeful that it will actually work.....this time.... then bitterly disappointed and depressed when it doesn't. I can see how frustrating this must be as a bystander, and to remain constantly supportive over all this time is quite an achievement. To see the person you love constantly seeking something, and never finding it, and ending up down in mood time and time again for years on end. He hasn't said this, but I'm thinking how I would feel. But when you are in constant pain, all you want is some kind of relief, a break from constantly being dragged down.

I am back at work tomorrow, on another 'phased return'. So, short days for two weeks, and no lifting heavy equipment. My wounds haven't healed yet from my laparoscopy and I am on antibiotics for an infection, but feel I need to get back to normal as soon as I can- whatever my 'normal' is! I have my next physio on 27th Feb. I am looking at this as potentially the last one, or near last one. I think she has done all she can really. My husband can continue to do the massage (he's very good). I need to get back to the gym, walking and generally being more active. This will help me physically and emotionally.

We'll see. If I am still struggling to cope with the pain of my coccyx, I will try CBT. If after 2-3 weeks I am improving I won't pursue that, I'll have champagne instead.

PM- Well forget the antidepressant for pain relief. I took one 3 hours ago and feel shocking. I am nauseous, only just stopping myself being sick- and could not eat my lunch. I am also getting palpitations and hot flushes on my chest- worse even than menopausal hot flushes. It also feels like tingling and crawling under my scalp, really not nice. I've been told this may go on for two weeks or so. No thanks. Call me pathetic but I cannot feel like this for two weeks, especially with returning to work tomorrow. Even if they worked, then what? Continue indefinitely or wean myself off them which I've also been told is really hard.

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