Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Monday, 5 January 2015

Pain

Well today did not get any better. I had the worst night I've ever had last night. I could not lie on my back or right side at all, and my right leg kept going numb. I couldn't lie on my stomach as I have a bad neck (longstanding injury). So I think if I was lucky I got a couple of hours.

On a positive note - I did get an appointment with my GP. She is happy for me to get my coil removed. She thinks it unlikely to be causing my coccyx pain. However as there is always an exception to the rule and an outside chance it may be aggravating a nerve nearby, she can understand why I want it out. That won't be until the 19th though.

There is a chance Tramadol may be causing my fast heart rate. So I have to continue avoiding this until Wednesday when all traces of it should have left my body. I am also booked in for bloods and ECG to be on the safe side. Part of me does not want it to be caused by the Tramadol as this is the only painkiller that has taken the edge off my pain. ECG and bloods booked this Friday. Obviously, it's probably better if it is caused by the Tramadol. It's a sad state of affairs that I would rather it was something else, just so my coccyx pain can be eased by analgesia!

I'm not sure if the pain I was in last night and that has carried on today, is a kind of muscle spasm, or delayed onset muscle soreness (DOMS), as I went back to the gym yesterday for the first time in a while. And I did push things a bit: normally exercise helps. I have also heard some people suggest deep massage may cause DOMS, and I certainly had that on Friday. 

I am frustrated by the NHS at the moment. I'm having to pay privately for my physio. I waited over a year for my NHS appointment with the trauma and orthopaedic consultant...OVER A YEAR! When I did finally see him in October he gave me his word he'd get me in for manipulation under anaesthetic and steroid injection (MUA) before the New Year. I have heard nothing, NOTHING! This to me just confirms how coccydynia and back pain sufferers are just not taken seriously at all. The amount of time I have wasted trying to see various 'specialists' and listen to their valued opinion makes me fume. They just don't seem to care.

In a way it suits me, as it's giving me time to pursue my physio option. It just makes me cross.

Again I ask: why do back pain sufferers and coccyx pain sufferers have such a battle to be listened to, and taken seriously and treated appropriately within an acceptable time frame?!

I am just thankful I have a lovely GP and physio.

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