Nurse who suffers chronic tailbone pain

My photo
I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Tuesday, 23 December 2014

Own your coccyx pain!

Since my physio on Friday I have had a mixed few days. The first day- as I said, I went to bed as the pain was so bad. I couldn't sleep, but I am slightly more comfortable when lying down. So it was more a case of just resting.

Yesterday I felt that things were slightly improved. I was managing to sit a bit more comfortably. I still tried to intersperse this with standing- for example doing a bit of last minute Christmas Shopping.

Today, I'm undecided really. I can't say I am noticing a drastic improvement yet. However, where the pain is has moved a bit. Whereas it was focussed around my coccyx and nearby. It is definitely more my right outer buttock, hip area now. When I sit it feels sore and bruised and like the whole area is pulling and tight.

I suppose this perhaps supports what the physio told me; she said she felt the pain was not now my actual coccyx, but the tissues and muscles surrounding it. I am still hopeful that if this is the case, that working these areas by manipulation and massage will retrain and re-educate them as planned.

My mood in general has been better. When I look up the definition of depression, I cannot say I have been at rock bottom. patient.co.uk have a helpful guide on depression. I will try and add their link to this page. If you suffer with 5 or more symptoms from the list below you are more than likely suffering with depression:


-Persistent sadness or low mood
-Marked lack of interest in activities you normally enjoy
-Change in sleep pattern
-Change in appetite
-Fatigue
-Agitation or slowing of movement
-Poor concentration, indecisive
-Feelings of worthlessness or guilt
-Recurring thoughts of death

Obviously, there is a lot more to depression than this. This is just a snapshot. Depression itself  is a complex illness.

I have certainly suffered with some of these symptoms, but I could not honestly say 5 or more. I do think I have been on the verge of it, driven by my constant, unrelenting pain.

However, when I look at sites such as coccyx.org or Facebooks 'Coccyx Pain Support Group' and I read other peoples stories, I realise how lucky I am. This condition is ruining peoples lives. It stops them functioning on a daily basis. It certainly helps stop me feeling sorry for myself. It is what drives me to continue my blog. It's what drives me to get this condition talked about and better understood.

I saw a friend yesterday who I hadn't seen for a while, they weren't even sure what a 'coccyx' was, until I said 'tailbone'. Then he said that he had back pain too. This is part of the problem; because it is not openly talked about people do not know what it is. They assume it is like any other back pain. In some ways it is- how it affects every aspect of your life. But in many ways, it is so very different.

Why is it that coccydynia, tailbone pain is not more widely acknowledged when so many people are affected; and when it affects people so dramatically.

Please shout it from the rooftops! Own it! Do not be embarrassed to talk about it! It needs to be recognised so that people get treated appropriately and within an acceptable length of time. Sufferers should be treated with sympathy and respect.

I don't know how else we can do that.

Depression Patient.co.uk

Coccyx.org My story is also here, along with many others

No comments:

Post a Comment