Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Monday, 3 November 2014

My History

When I first approached a consultant with my problem back in about 2010, he said it sounded like an impact injury, and confirmed his opinion when he saw my x-rays. This was also the case with the chiropractor and pain consultant. All have said it looks like an old impact injury.

This got me thinking about what may have caused it. I do remember being kicked right on my coccyx when I was about 12 years old, by a 'lovely' boy (whose name I still remember!) No-one took me seriously back then and I was told he liked me and was trying to get my attention- he certainly did that!

I have also fallen off a horse, and slipped down the stairs over the years, as well as riding some very rickety, bumpy old tractors and trailers!

However, this episode of pain started after spin-cycling which I became slightly obsessed with, going 3-4 times a week. In my search of the internet I have found cycling as being cited as a cause, as well as childbirth, trauma, sitting on hard surfaces for a long time; and sadly years ago, as it was predominately found in women 'neurosis'. My pain was insidious, I cannot remember exactly when it started, just that I became more and more aware of it after my cycling; which I have now obviously had to stop.

An orthopaedic consultant (2010) diagnosed a 'wobbly' coccyx and manipulated and injected the joint with steroid (under anaesthetic). Which helped at the time for up to 8 months.

My (2012 and 2013) Spinal Consultant Surgeon  diagnosed 'hypermobility' of the joint. So that in other words, it pops in and out of joint when I sit down. He recommended manipulation and steroid injection, as before. But felt complete removal was probably my best bet. I have since had the MUA and injection, but it did not help at all, either time. I am no way ready to consider removal as I have read mostly bad results, and he only performs one or two of these procedures a year.

The chiropractor that I saw over several weeks/months (01/2014) diagnosed with more X-rays- 'sacro-coccygeal joint fusion in an extended position, with the second joint slipped forward (anterolisthesis) and calcification'. He attempted manipulation (without anaesthetic) and deep tissue massage. The results were not worth it for what it was costing so I stopped going.

More recently a Pain Consultant (08/2014), agreeing with the above verdicts, tried ultrasound guided steroid injection. But this has again failed. He showed me my fused and slipped joints on the scan. He has now suggested an Impar Nerve Block may help.

In the meantime I have seen another Trauma and Orthopaedic Consultant (09/2014), who wants to do another MUA and steroid injection. He dismissed the Pain Consultants view and said that an Impar Nerve Block may not reach the correct place.

The Pain Consultant when I told him this, dismissed the Orthopaedics view and said MUA won't work as the joint is meant to be mobile.

I have also seen a general physio- who just gave me exercises to do (which aggravated things).

I am now waiting to see a Women's Health Physiotherapist who specialises in Coccydynia and apparently works on pressure points. My first appointment is this Friday.

I am exasperated that although people seem to agree what is causing the pain, they cannot agree the best course of action, all disagree with each other and ultimately, to date have not helped!

 coccyx.org Is an extremely useful resource for fellow sufferer's.

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