Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Thursday, 6 November 2014

Is it a fruitless mission?

I'm beginning to wonder if this is a fruitless mission.

Today, as part of my job I visited an elderly lady who had fallen. She was complaining of bad back pain. Further questioning revealed that it was actually her coccyx causing the pain, and that she had fallen onto this. On examination I found bruising in this area. Has she broken it? Just bruised it? Whichever, it is causing her a great deal of discomfort.

The frustrating thing is that apparently due to her falls she cannot have strong pain relief. She is very unsteady (hence the fall), so physiotherapy may not be an option. The GP I spoke to said there is really not much that can be done. Pushing for an X-Ray is an option; but to what end?
I can pursue getting her an appropriate cushion, but I'm not sure the NHS will provide this. The only consolation was that she told me she was not too bad when sat in her chair, bed was worse.

This is all frustrating, and to be honest quite disheartening. The thought of being chair bound or having restricted movement AND coccydynia is awful. To be in pain and be able to do absolutely nothing about it. Things will not improve as any of us age. We could all fall onto our coccyx and damage it.

I do follow peoples progress on the Facebook Coccyx Support Group, and I know in comparison to many I am quite lucky. I have a relatively active job, can spend time at the gym and have a supportive network of people around me. I am not debilitated as many are.

Why is this condition so hard to treat? Why does it not get resolved? Why do so many people- health care professionals included just think it acceptable to say "there's nothing we can do"?! What other chronic pain condition would this occur with? It does not seem to be taken seriously enough.

Some people have fractured their coccyx, some have hypermobile coccyx, some have bruising, some have coccyx that are dislocated or bent in an awkward position. But whatever the cause surely it should be treated relentlessly until that individual is completely pain free?

I will continue to try and fight the cause! #Workinprogress!

My Twitter is @coccyxpain

Plural of coccyx is coccyges apparently!

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