Nurse who suffers chronic tailbone pain

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I am a Registered Nurse who has suffered with tailbone pain for over 8 years. Like all chronic pain, it is essential that sufferers get the correct support, diagnosis and treatment appropriate for them as an individual. This blog follows my journey with chronic pain, it expresses my personal opinions and thoughts. It is not intended as a replacement for advice or treatment from your normal Healthcare Provider.

Saturday, 1 November 2014

Coccyx pain is not back pain!

I have suffered with coccydenia for about 5 years now. I have tried manipulation under anaesthetic (MUA), steroid injections, seen a chiropractor and a physio. Painkillers don't touch it.
The first MUA and steroid injection worked, three since have not. One of these I paid for privately out of sheer desperation at over £2,000.
The chiropractor tried internal manipulation also...(not nice!).....but I did not see any real improvement after about five sessions. As this was an expensive chiropractor in London, and as I also had to pay for a train to and from London I had to stop going.
A pain consultant tried steroid injection with ultrasound guidance to get to the right spot. This has not helped either. Again paid for privately. He is now suggesting an 'impar nerve block'. He feels manipulation is not the way to go as the coccyx is meant to be mobile.
A trauma and orthopaedic surgeon is suggesting I try another MUA with steroid injection. He feels impar nerve block will not help. He also feels a coccygectomy may be my only hope: not a path I'm ready to travel!!
Thanks to contact with fellow sufferer- the boxer Audley Harrison, I am now going to try a physiotherapist who deals with coccydenia. She is a women's health physio. Apparently she treats pressure points. Audley  has also suffered with tailbone pain, and found a physiotherapist in America that helped him.
Physio to date has been a waste of time as I was simply given exercises to do and have not received any specific treatment as such.
So watch this space.
I am incredibly frustrated that this condition is so poorly understood. It is not back pain. It is coccyx pain, entirely different. No one can agree how best to treat it, they can't even agree how to spell coccydenia/coccydynia/coccydaenia!
It affects every aspect of my life. After a hard day at work all I want to do is sit down in comfort, and it's the one thing I cannot do. I cannot travel any distance. I cannot sit through a long film at the cinema. I cannot sit comfortably at work. I cannot sit at the dentist or hairdressers etc etc.
So I am starting to blog to share my experience and that of fellow sufferers. Chronic pain is no fun at all.

2 comments:

  1. Very informative blog and very nicely documented!!

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  2. Thankyou Anita. I appreciate your feedback :)

    ReplyDelete